Tuesday, January 15, 2019

Bad News

I have received a telephone call from the Royal Marsden saying that I have not been successful in getting onto the immunotherapy trials due to my low levels of haemoglobin. They said it wasn’t fair to go through another screening process which is time consuming with little prospect of success without multiple blood transfusions which the trials don’t allow without a three week post-transfusion gap.

So I am waiting to speak to my oncologist to get started on Lonsurf (what I believe to be the last type of chemo treatment available to me).

Physically I haven’t been too bad. I’m struggling with dizziness and in the last couple of days my feet have become puffy and they hurt. I’m still getting nausea in the morning and when I get too hot. 

Also, I am still being plagued by night sweats, which Andy is great with helping me change the bedsheets in the middle of the night!

On the plus side we had a lovely Christmas with my children and the baby.

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