Thursday, September 27, 2018

Back at home but not good news

For those of you that don’t know I’ve been allowed home from hospital with a whole load of antibiotics to take, but at least for now there are no more needles.
I’ve still been sickly and am struggling to keep food down. Also, I’m falling asleep all of the time... it’s like I’ve got narcolepsy!
Unfortunately the surgeons met and have decided that surgery is not an option for me. They believe the infection is in the secondary tumours, which are attached to my bowel/stomach and that there could be some leakage into my abdomen. I’m not really surprised as there’s not enough of my bowel left to work with.All in all it means there’s nothing more other than antibiotics that they can do for me. My surgeon said I don’t have long left, but couldn’t define that statement further. I have the hospice involved in my care now and a DNR in place so that if things get really bad, they don’t intervene surgically, as there is no point.
We are trying to get out in the wheelchair as much as possible while I still can, but I have no idea how long it’ll be that I am able to. 
I’m not really up for visitors at the moment due to my sickness and tiredness. We’re also trying to get our heads round the finality of the situation we find ourselves in, whilst still trying to stay positive and make the most of each day.
I am so grateful for all of the support I’ve received and please forgive me if I don’t reply to messages; it is literally that I’m not feeling well enough. X