Last week I booked the wedding and pre paid my funeral (I bet there aren’t many people who do that in the same 7 day period!). I also had lots of other appointments and plans for this week, including wedding dress shopping, which were scuppered by my temperature being sky high on Tuesday, meaning I had to be admitted to hospital.
My temperature had been up and down in the previous few days. At one point it hit 38.9 and we called the emergency oncology line. They said they did not have enough staff to triage on a Sunday so we should go to A&E! There was no way I was going up there to sit for 5 and a half hours again (as this is what had happened a couple of weeks ago and I cannot sit upright for more than about an hour without being in pain. Also, I do not believe A&E is the place for terminally ill people to be), so we left it another hour and by then my temperature had dropped back down.
By Tuesday morning the pain was really bad and I felt horrible so Andy called the emergency line again and this time they told him to bring me in to the Macmillan Day unit (a much more appropriate place). They took bloods, which came back showing an infection and told me I would need to stay in hospital for 24-48 hours. It’s now Thursday and I’m likely to be in for at least a further couple of days as my haemoglobin is low and I’m anemic so they are planning to do a blood transfusion tomorrow. My temperature is also still up and down so I’m not going anywhere anytime soon.
It’s so frustrating because I was due to have a PICC line put in tomorrow morning as my veins are getting more and more difficult to get blood from and to get lines in. This can’t happen now until I’m infection free, so these poor nurses are having to battle with my crappy veins.
I just need to shift this thing now before it interferes with my next program of chemo!
