Pushed from Pillar to Post

I have emailed several charities and organisations to explain my situation and ask for their support. Many have not even replied, but those who have have basically said they cannot help me and then pointed me in the direction of another organisation who has already told me they can’t help me. They are literally recommending each other! On the plus side, Andy has started an online petition on Change.org. To try to persuade NICE, the government and the NHS to look at the funding and licensing of this drug for bowel cancer again. It already has over 1000 signatures in just 1 day. The link for the petition is here: https://www.change.org/p/uk-parliament-stop-the-unfair-cancer-treatment-lottery Please sign it. We are now in the process of trying to obtain contact details to promote publicity for my cause in the media. It’s an area we know very little about so we are feeling our way.

In other news, I finally have a date for my portacath to be fitted: 17th March. After that we should be able to book a proper holiday (a bit apprehensive about doing so with this coronavirus stuff going on though!).