Thursday, September 27, 2018

Back at home but not good news

For those of you that don’t know I’ve been allowed home from hospital with a whole load of antibiotics to take, but at least for now there are no more needles.
I’ve still been sickly and am struggling to keep food down. Also, I’m falling asleep all of the time... it’s like I’ve got narcolepsy!
Unfortunately the surgeons met and have decided that surgery is not an option for me. They believe the infection is in the secondary tumours, which are attached to my bowel/stomach and that there could be some leakage into my abdomen. I’m not really surprised as there’s not enough of my bowel left to work with.All in all it means there’s nothing more other than antibiotics that they can do for me. My surgeon said I don’t have long left, but couldn’t define that statement further. I have the hospice involved in my care now and a DNR in place so that if things get really bad, they don’t intervene surgically, as there is no point.
We are trying to get out in the wheelchair as much as possible while I still can, but I have no idea how long it’ll be that I am able to. 
I’m not really up for visitors at the moment due to my sickness and tiredness. We’re also trying to get our heads round the finality of the situation we find ourselves in, whilst still trying to stay positive and make the most of each day.
I am so grateful for all of the support I’ve received and please forgive me if I don’t reply to messages; it is literally that I’m not feeling well enough. X

3 comments:

  1. Everyone is thinking of you Charlene xxx

    ReplyDelete
  2. You are in our hearts, and minds, and prayers each passing hour. You are a very much loved soul Charlene, such a good woman and a special human being...give strength and courage to that lovely man who walks by your side, step by step......into the future...no matter what it holds...we are all with you.....take care...

    ReplyDelete
  3. Dear Charlene,
    May you know the love of Jesus to carry you through this time and when we put our trust in Him death is not the end.
    I am the resurrection and the life. All who come to me shall not die but have eternal life.
    John 11:25
    We miss you at school and pray on for you and your family.
    Love Maureen and Eddie

    ReplyDelete