However, the consultant assured me yesterday that there has been no change in my tumours when compared to the previous scan so everything still seems stable. She couldn’t really explain the increase in abdominal pain apart from the scar tissue causing me problems. So I’ve just got to take more morphine when it’s bad... a small price for the overall knowledge that I’m still ok for the next few months at least. It’s very strange going through life in four-monthly intervals, each time winding yourself up with worry that this time might be the one where the treatment is no longer effective.
I’ve been on the Nivolumab treatment for two years now... two years I wouldn’t have otherwise been here! This month is the point where the trial would have ended and funding for my treatment stopped. But in a weird twist of fortune, the COVID-19 pandemic has ensured my treatment can continue indefinitely 😊
I had my first COVID-19 jab yesterday so that makes me feel a bit safer about leaving the house too. Lockdown is really hard for everyone, but especially for the people who have to shield and their family. I can’t believe I haven’t seen my parents or grandparents for over a year now 😳
The van conversion is almost finished, though I feel a project like that is never truly finished. Check out the photos on Flickr:
https://www.flickr.com/gp/142701651@N08/0EJnnE
Ive started to make a king size patchwork quilt for the bed in the van... I didn’t realised quite how much work this would entail. I’ve cut out 144 squares of fabric and I’m sewing them together in rows of 12 squares- accuracy is key- this could take some time!
Stay safe everyone x
