Yesterday I finally got my scan results, a week later than was originally planned, as for some reason the reports from CT scans are taking ages at the moment. The results showed that there has been no further disease progression. So basically that means the tumours have remained the same size. I felt a bit flat when I was told; I think I was really hoping for more shrinkage like last time. But the consultant assured me that it is good news as it’s what we want the drugs to do (either slow or stop disease progression). He also tried to convince me not to worry in the build up to each three month scan because if there were any disease progression, he is sure I would notice it in myself as I would begin to feel poorly again. He reminded me that the effects of this immunotherapy treatment have been really successful as, in his words, I have “stood up and walked out of the coffin!”
Finally, I have been referred to have a port fitted. This is to replace my PICC line and is an access point embedded under the skin in the chest. The advantage of this is that it will only need to be serviced once a month rather than once a week with the PICC. This will make going away a lot easier as we won’t be restricted as much by dates and having to get back to Ipswich for weekly PICC line care.
